Association „Life” Association „Life”

Association „Life” was founded in 2010 by two families, Mirosavljevic and Covic, whose children Zoja and Aleksa were suffering from a very rare neurodegenerative and deadly Battens disease.

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NORBS NORBS

NORBS was founded on July 23, 2010, as an association of associations dealing with issues of people with rare diseases and members of their families.

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Citizens Association for Rare Diseases "LIFE WITH CHALLENGES" Citizens Association for Rare Diseases "LIFE WITH CHALLENGES"

The LIFE WITH CHALLENGES Association was founded in 2009 and for eleven years the association has been advocating for the rights of patients with rare diseases and a better health care system.

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National Alliance of Rare Diseases of Macedonia National Alliance of Rare Diseases of Macedonia

Together we are committed to the treatment, care and services we need and create solutions to the everyday challenges that come with rare diseases.

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NORBCG NORBCG

Social-humanitarian association, founded as a voluntary association of individuals suffering from rare diseases, members of their families and citizens associations.

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Hrvatski savez za rijetke bolesti Croatian Association for Rare Diseases

The Croatian Association for Rare Diseases is the umbrella organization for rare diseases in Croatia.

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Savez za rijetke bolesti Republike Srpske Alliance for Rare Diseases of Republika Srpska

The Association is a voluntary, humanitarian, non-partisan, non-governmental and non-profit organization, founded as an association of citizens associations and since 2016 it has the status of an Association of special public interest for the Republika Srpska.

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