We invite medical workers and professional associations to get involved and help colleagues with advice or find answers that will help patients.
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We invite patients, members of their families and associations to get involved, share their experiences, ask questions.
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We invite companies, individuals, the entire public to help us know that those with rare diseases are not alone.
Read more +RARE, BUT NEVER ALONE
The Rare Diseases Database is a unique regional project aimed at shortening the time to diagnosis and providing broad support to patients suffering from rare diseases.
The database is periodically updated and with your suggestions, information and knowledge you can contribute to the improvement of the portal and its content in the relevant segments.
The mission of the Rare Diseases Database is to help doctors and patients, but also to raise awareness among the general public about rare diseases.
Read more about the latest articles and news
| Baza Retkih Bolesti
Bojana Mirosavljević, osnivač Baze retkih bolesti, nominovana je za ovogodišnju nagradu „Rare Champion of Hope”, koju dodeljuje najpoznatija svetska organizacija posvećena retkim bolestima Global Genes za izuzetan doprinos u zastupanju osoba s retkim bolestima....
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| Baza Retkih Bolesti
Virtuelni skup ˮRare Diseases and Orphan Products Breakthrough Summitˮ biće održan 8. i 9. oktobra. Učešće na skupu je besplatno....
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| Baza Retkih Bolesti
Približava se 1. oktobar, Međunarodni dan Gošeove bolesti. Jedna od aktivnosti u okviru ove manifestacije jeste #WEAREGAUCHER Digital Conference, koja će okupiti vrhunske svetske stručnjake u dijagnostici, lečenju i primeni novih tehnologija kada je u pitanju Gošeova bolest....
Read more +Companies and institutions that helped the Rare Diseases Database
