Baza Retkih Bolesti
  • Information on rare diseases
    Doctors advice, contacts of associations from the entire region in three languages
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Poziv lekarima

CALL TO DOCTORS

We invite medical workers and professional associations to get involved and help colleagues with advice or find answers that will help patients.

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Poziv pacijentima

CALL TO PATIENTS

We invite patients, members of their families and associations to get involved, share their experiences, ask questions.

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Pozivamo vas

WE INVITE YOU

We invite companies, individuals, the entire public to help us know that those with rare diseases are not alone.

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RARE, BUT NEVER ALONE


THE RARE DISEASES DATABASE

The Rare Diseases Database is a unique regional project aimed at shortening the time to diagnosis and providing broad support to patients suffering from rare diseases.

The database is periodically updated and with your suggestions, information and knowledge you can contribute to the improvement of the portal and its content in the relevant segments.

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The mission of the Rare Diseases Database is to help doctors and patients, but also to raise awareness among the general public about rare diseases.

  • Important information
  • Knowledgebase
  • Networking
  • Psychological support
  • Contacts of the association
  • Email notifications

Latest news

Read more about the latest articles and news

Partners

Companies and institutions that helped the Rare Diseases Database

VEGA IT
NIS
Pokrajina zdravstvo
Ministarstvo za rad, zapošljavanje, boračka i socijalna pitanja
Biomarin
Regenxbio
Novartis
Roche
Nutricia
Sanofi Genzyme
Takeda
Pfizer
Sobi
Retro Digital Agency