Baza Retkih Bolesti
  • Information on rare diseases
    Doctors advice, contacts of associations from the entire region in three languages
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Poziv lekarima

CALL TO DOCTORS

We invite medical workers and professional associations to get involved and help colleagues with advice or find answers that will help patients.

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Poziv pacijentima

CALL TO PATIENTS

We invite patients, members of their families and associations to get involved, share their experiences, ask questions.

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Pozivamo vas

WE INVITE YOU

We invite companies, individuals, the entire public to help us know that those with rare diseases are not alone.

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RARE, BUT NEVER ALONE


THE RARE DISEASES DATABASE

The Rare Diseases Database is a unique regional project aimed at shortening the time to diagnosis and providing broad support to patients suffering from rare diseases.

The database is periodically updated and with your suggestions, information and knowledge you can contribute to the improvement of the portal and its content in the relevant segments.

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The mission of the Rare Diseases Database is to help doctors and patients, but also to raise awareness among the general public about rare diseases.

  • Important information
  • Contacts of the association
  • Networking
  • Psychological support
  • Email notifications
  • Knowledgebase

Latest news

Read more about the latest articles and news

Nominacija za nagradu „Rare Champion of Hope”

| Baza Retkih Bolesti

Nominacija za nagradu „Rare Champion of Hope”

Bojana Mirosavljević, osnivač Baze retkih bolesti, nominovana je za ovogodišnju nagradu „Rare Champion of Hope”, koju dodeljuje najpoznatija svetska organizacija posvećena retkim bolestima Global Genes za izuzetan doprinos u zastupanju osoba s retkim bolestima....

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#WEAREGAUCHER Digital Conference biće održana 1. oktobra

| Baza Retkih Bolesti

#WEAREGAUCHER Digital Conference biće održana 1. oktobra

Približava se 1. oktobar, Međunarodni dan Gošeove bolesti. Jedna od aktivnosti u okviru ove manifestacije jeste #WEAREGAUCHER Digital Conference, koja će okupiti vrhunske svetske stručnjake u dijagnostici, lečenju i primeni novih tehnologija kada je u pitanju Gošeova bolest....

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Partners

Companies and institutions that helped the Rare Diseases Database

VEGA IT
NIS
Pokrajina zdravstvo
Ministarstvo za rad, zapošljavanje, boračka i socijalna pitanja
Biomarin
Regenxbio
Novartis
Retro Digital Agency