We invite medical workers and professional associations to get involved and help colleagues with advice or find answers that will help patients.
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We invite patients, members of their families and associations to get involved, share their experiences, ask questions.
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We invite companies, individuals, the entire public to help us know that those with rare diseases are not alone.
Read more +The Rare Diseases Database is a unique regional project aimed at shortening the time to diagnosis and providing broad support to patients suffering from rare diseases.
The database is periodically updated and with your suggestions, information and knowledge you can contribute to the improvement of the portal and its content in the relevant segments.
The mission of the Rare Diseases Database is to help doctors and patients, but also to raise awareness among the general public about rare diseases.
Read more about the latest articles and news
| Ana Pataki
U Evropi živi 30 miliona osoba obolelih od retke bolesti. Svaki pacijent koji ima dijagnozu retke bolesti predstavlja dovoljno jak motiv i razlog da Evropa pripremi plan delovanja protiv retkih bolesti u ime svih osoba do 2030. godine....
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| Ana Pataki
U znak zahvalnosti, porodice obolelih od fenilketonurije i udruženja širom sveta slave rođendan Roberta Gatrija i Horsta Bikela, kao Međunarodni dan fenilketonurije....
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| Ana Pataki
U okviru edukacije planirane za 15. jun 2021. godine će biti predstavljeni načini i procedure za dijagnostiku i lečenje retkih bolesti u Srbiji i inostranstvu....
Read more +Companies and institutions that helped the Rare Diseases Database
